Release Date: February 28, 2013
The lives of the Hall-Buques changed forever when their son Ben was diagnosed with a rare neurological disorder called Ponticerebellar Hypoplasia Type 3 (PCH3).
Ben was born with an under developed cerebellum and brain stem which has resulted in severe developmental delay.
He also has been diagnosed with Cerebral Palsy (under spectrum PCH3). Ben has a right clubfoot, which he had surgery on in 2008 to loosen his tendons, and will probably have to have more surgeries like this in the future.
Ben is a lively 5 year old, has a new desire to stand and bear weight on his legs, loves to swim, and attends school regularly – where he watches and laughs with the others. Ben now has a Pony Walker, which introduced a new way for him to move and more importantly, new independence. While he does not always love it, the walker provides opportunity for him to get from Point A to Point B without assistance.
Ben has an older and a younger sister and two very supportive parents. You can follow their family blog at http://inlovewithben.wordpress.com.